Wednesday, November 24, 2021

A Father's Undying Will To Find Medicine For His Dying Child



Hopeless battle.

Xu, who has only high school education and a small online entrepreneur, has scoured

the internet to seek information and possible cure to his son’s disease. He maximized

all the apps he knew in order to translate pages into Chinese and learned

pharmaceuticals by himself.  In one of his readings, he came across copper histadine

can help in his baby’s battle against his disease. But since the lockdowns and travel

restrictions imposed in connection with the  spread  of the covid 19 virus made it

severely tough for the 30-year old Xu Wei from southwestern Kunming to travel far

and wide to seek medications that can cure his two-year old baby born with the very

rare Menkes Syndrome disease.


Menkes Syndrome is a very rare genetic disorder due to the poorly distributed but very vital copper protein needed for the function and development of the bones, skin, hair, blood vessels and the nervous system.  Infants diagnosed with Menkes Syndrome are said not to live past three-years old.  It's a very rare disease affecting one in 100,000 to 250,000 of babies.  Clinical tests and trials of injecting copper supplements have only resulted in a very insignificant effect.  Pharmaceutical companies seem to have shown little interest manufacturing medications for Menkes Syndrome due its low commercial value and insignificant number of users.



Hope against all hope.

Realizing that the odds of securing the medicine was quite very low, he decided

to make the medicine himself, turning his father’s gym into a makeshift laboratory

to concoct and make medicines himself for his dying son.  But many among his

friends and family were against his ideas.


And when the concoction was ready, he tested and injected it with rabbits and

then to himself.  When he saw no adverse reactions, he then tried it gradually on

his baby. Increasing the dosage by and by. Xu knew that what he made was not

a cure but could only slow the progression of the disease at least.


The aftermath of hope.

Xu’s diligence and perseverance  have somewhat awakened significant people.

He was contacted by other parents with children of the same disease to share

his concocted medicine.  He told them that his concoction was for own home use

only and turned them down saying he can only be responsible for his own.  The

chief scientist of a biotech lab was also inspired by Xu and launches gene therapy

research for Menkes Syndrome with him.



In the near future, Xu likewise plans to take up molecular biology at a university

soon as aid for his will in protecting and saving his son. He said that he just want

hope instead of just desperately awaiting the death of his son.



***

#whyzee

#menkessyndrome

#xuwei

#hope

#parenting

#love

Tuesday, June 15, 2021

WHO ARE THESE VACCINE PEOPLE?



WHO ARE THESE VACCINE PEOPLE?

Nowadays, If you notice, people around the world are hessitant to get vaccinated despite the great effect of the covid-19 virus to the human body if one was not treated or innoculated. To them the underlying reasons were quite a major decision to make.

Almost every nation urged their citizenry to get vaccinated to avoid if not lessen the risk of getting sick with the virus and die. Health advocates tried to categorize these vaccine-hessitant people as a way of understanding their stand againt the vaccine and below reveals who these vaccine people were.

A. THE VACCINE SKEPTICS

The Vaccine Skeptics firmly believe on their conviction that it was their own personal choice that must be respected. They feel getting the covid vaccines goes against their religious faith beliefs and firmly denies their bodies not to be injected with something that are uncertain and could potentially harm the temple body entrusted to them by the Almighty God.

B. THE VACCINE OBSERVER

These keen Vaccine Observers normally observes the social norms. They have the 'follow the majority' mentality be it a fad or a protocol being followed my most. and to be sure, they are likely to follow suit after most have been vaccinated.

C. THE VACCINE COST CONCIOUS

The Vaccine Cost Concious people believes that there was a hidden cost though the vaccine were free. They believe, costs and expenses will surface later once the vaccine affects the body later and may result to an alarming expenses later. They were mostly cost concious on the effect of the vaccine to them.

D. THE VACCINE CYNICAL

The Vaccine Cynicals were those who believe that taking the vaccine is just part of a big scheme in order for people to attain unbelievable goals for the society. In order for these people to get vaccinated, reliable and transparent campaigns might let one pin the vaccines unto their muscles.

When we were young, we get vaccinated despite our shrieks and protests due to the thought of pain once the needle was pricked on us and our parents along with the health workers assisting will just give us candies or ice cream in return once we agree. As toddlers, we hardly knew what will the vaccine bring to us unless they explained it. But now as adults in the middle of this pandemic, it seems the only choice we have is to get the vaccine in order to return to our normal ways before the pandemic happened.

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